I've just been diagnosed with multiple sclerosis
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I Am by Skyfyre I am ... A woman
Thanks for all the support guys!  My neurologist put me on the new oral medication Tecfidera that's just been approved. So that means no sticking myself with needles...yay! Took my first dose tonight so we'll see how it goes. |
| Find all the good docs and nurses and continue to use them! |
113 years old from Monkey Fonics,Facilitator,Smart Arse
An average day at the offices of... from
If I could swap you with someone else I genuinely would!!! |
113 years old from Monkey Fonics,Facilitator,Smart Arse
An average day at the offices of... from
| This is awesome that you're getting good care/nursing and keeping your chin up over this! |
I Am by Skyfyre I am ... A woman
| Oh forgot to add...the nurse who did my infusion was just AWESOME!!! Can't say enough good things about her! Now I get to do the last 2 infusions at home by myself...yikes! Ok that's all! hehe |
I Am by Skyfyre I am ... A woman
| haha I think I overdid it with the smileys! Oops! |
I Am by Skyfyre I am ... A woman
Posted by starlite Thank you! You are so sweet. I'm so sorry to hear what you are going through. I will keep you in my thoughts. I hope things will turn out well for the both of us too! Well, it turns out that I most likely have MS. It's slowly starting to sink in now and I'm accepting it. I've almost completely lost my vision in my left eye and was just diagnosed with optic neuritis which is common in MS patients. So I just had my first steroid infusion today. Not fun, but I understand it's necessary to help restore my vision. I just absolutely hate needles! haha yeah, I'm such a baby. But I only have 2 more infusions to go and then I can take the oral prednisone. I'm not a fan of taking all these meds...blah. I'm doing fine though and just crossing my fingers that my vision returns soon! Wow, I realized I say the word "just" far too much! Sorry about that... Thanks guys for the words of encouragement! I wont post about this anymore as I feel like I'm turning it into some pity party for myself which is not my intentions. As I know so many people have this as well as far worse diseases. So I am very grateful this is all I have! Just wanted to post an update.Thanks again! Oh...and please excuse all the grammatical errors!! |
I Am by Skyfyre I am ... A woman
| Thanks all I completely forgot about posting this! I'm doing ok actually. I'm still not sure if I "really" have it or not. Haven't been back to the doctor since and I still refuse to take the medication with all the side effects and all. I'm just trying to forget about the whole thing. Although, I am still getting bills from when I had the MRI and such which makes it hard to forget. Then I have my mom who is always bringing it up. She called me the other day JUST to tell me that so and so was diagnosed with it too. She was like, "oh you remember so and so who went to our church when you were a child? Well guess what? She was just diagnosed with MS too!" Really mom, really? I know she means well, but I'd just rather forget about it all...especially since I don't even know if it's what I have or not. I'd rather not know either way. Ignorance is bliss afterall! I've also been symptom free since. Well, until a few days ago at least. I've been having some issues with my left eye and with my vision being very blurry and out of focus in that eye. But I'm not even sure if it's a symptom of the MS or something else entirely. I assume I'll find out soon enough since I'm due for another eye exam in a few weeks. |
from Lib/Sag/Aqua
| How're you doing? |
free, creative, loving, love dancing, si
| Dont listen TOO much to the doctors!! Although a much less serious complaint, i was diagnosed with severe neck arthritis. My *wonderful* doctor told me there is no cure and it would get worse ~ lovely hey?? I am now seeing an osteopath who tells me it is getting BETTER and i am feeling less pain. You are doing the right thing in not believing what you are being told....they are very often WRONG!! Try seek out other avenues of healing, i rarely go to the medical people any longer, only for diagnosis Sending lots of love and light to you dear woman! xxxxx |
thrill seeking dare devil who loves to l
sorry Midnite - just found this now I had a friend who contracted MS when she was in her early thirties. Active girl - we rode horses together. Gradually things started to slide, joint pain, becoming less and less mobile. Ended up she could no longer ride (devastating for her.) Just watching her walk around became painful for me She ended up in a wheelchair.Having said all this - this was a long time ago in a galaxy far far away. I am sure medical science has come a long way in that time. Knowlege about the disease and treatments will have improved in leaps and bounds. But stay positive. Doctors DO NOT know everything. We have a funeral tomorrow for a lady who went to her doctor 6 weeks ago feeling achy and out of sorts. Doc told her to go home, nothing wrong with her. Few days later she fainted at afternoon tea visiting her friend, was rushed to hospital and found to be riddled with cancer  Big woolly Ram hugxx |
A variety of a being called "human"
| If it is truly MS, follow you drug/eating regimen very carefully. You can have a good health promoting life just from that. Listen to the doctor about YOUR uniqueness and presentation. The internet and other sources are various case studies and this will not always give you answers you need. Stay positive and encouraged. |
| You should have at least gone to see what the neurologist had to say. You wouldn't HAVE to take any type of medication they would have given you if you thought differently. The misdiagnosis that I witnessed was ruled out by a neuro, so he was the one speaking common sense into the jump the gun diagnosis based on an MRI with brain lesions. Those people who interpet the MRIs aren't specialists by any means and someone like a neuro would have been able to help you best, regardless of what the outcome. I understand where you're coming from though. But you should have at least gone to see what he/she thought. Even if you were to have it, the earlier you catch it, the more treatable it is. |
I Am by Skyfyre I am ... A woman
| Thanks everyone! I just refuse to believe I have this. I've been thinking a lot over this and have come to the conclusion that the doctors are wrong. I just feel it in my heart. I am not going to my neurology appointment on Thursday just to be given a medication that may or may not help something I may or may not have. I've read about so many people being mis-diagnosed. I have only had one symptom of MS and I haven't had that or any other symptom since. If I have any symptoms in the future then I'll contact my doc, but as long as I'm fine I'll continue living my life as usual. All of my bloodwork and every other test has come back completely normal. They are just basing this off of ONE MRI test that showed a few lesions on the brain. For all I know, my severe and chronic migraines could have caused those lesions. I've done some research that showed migraines can cause brain lesions. But I'm no doctor of course. I just know my own body. Maybe it's fear talking, but I just don't want to deal with this anymore. |
| Any word? |
